Clinical Research Papers:
Design and implementation of a mobile system for lung cancer patient follow-up in China and initial report of the ongoing patient registry
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Xiangyun Ye1,*, Jia Wei2,*, Ziming Li1, Xiaomin Niu1, Jiemin Wang2, Yunqin Chen2, Zongming Guo2 and Shun Lu1
1 Shanghai Lung Cancer Center, Shanghai Chest Hospital, Shanghai Jiaotong University, Shanghai, China
2 Research and Development Information China, AstraZeneca, Pudong, Shanghai, China
* These authors have contributed equally to this work
Shun Lu, email:
Keywords: lung cancer, China, mobile app, registry, data integration
Received: June 11, 2016 Accepted: October 17, 2016 Published: November 30, 2016
Introduction: Management of lung cancer remains a challenge. Although clinical and biological patient data are crucial for cancer research, these data may be missing from registries and clinical trials. Biobanks provide a source of high-quality biological material for clinical research; however, linking these samples to the corresponding patient and clinical data is technically challenging. We describe the mobile Lung Cancer Care system (mLCCare), a novel tool which integrates biological and clinical patient data into a single resource.
Methods: mLCCare was developed as a mobile device application (app) and an internet website. Data storage is hosted on cloud servers, with the mobile app and website acting as a front-end to the system. mLCCare also facilitates communication with patients to remind them to take their medication and attend follow-up appointments.
Results: Between January 2014 and October 2015, 5,080 patients with lung cancer have been registered with mLCCare. Data validation ensures all the patient information is of consistently high-quality. Patient cohorts can be constructed via user-specified criteria and data exported for statistical analysis by authorized investigators and collaborators. mLCCare forms the basis of establishing an ongoing lung cancer registry and could form the basis of a high-quality multisite patient registry. Integration of mLCCare with SMS messaging and WeChat functionality facilitates communication between physicians and patients.
Conclusion: It is hoped that mLCCare will prove to be a powerful and widely used tool that will enhance both research and clinical practice.
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